As nurses, we are by nature Patient Advocates. Oftentimes patients seek our guidance to locate resources to better understand the intricacies of an individual disease process. Nurses benefit significantly from educational opportunities which improve patient care as well as assist in advocacy efforts. While ultimately, their physician delivers a diagnosis and develops a Plan-of-Care, nurses are involved in intimate details of their sequelae; spending a greater number of hours with patients in the home site-of-care.
Once a treatment plan is created, it is helpful for a patient (or caregiver) to participate in all aspects of their own individual care. This may be helpful in the restoration of confidence, control, and general emotional well-being.
Our hope as caregivers, is that this blog will provide useful tools and links to assist nurses to locate nurse-centric and patient-centric resources; specific to multiple disease states and to the administration of IgG therapy.
In addition to educational blogs, Nufactor also provides Nursing Education opportunities in the form of CEU programs (individual or group/agency) in-person, via telephone, or via Webinars.
Nufactor Specific Nursing Support:
- Nufactor Website:
Nufactor is a Specialty Infusion Company dedicated to the chronic illness community; we provide specialty products and create individualized patient care to achieve safer, healthier and higher quality lives. nufactor.com
(800) 323-6832. - IG Living Magazine with IG Featured Articles:
Brings together patients, advocates and caregivers in the immune globulin (IG) community www.IGliving.com. - IG News:
Keeping you abreast of the latest developments in the IG industry and community. - Product References:
Reference charts and links to manufacturers of IG brands. - Client Service Specialists (CSS):
Each patient is assigned an individual CSS to coordinate care, conduct follow-up calls, and to interact with home-infusion RNs for supply coordination as well as schedule follow-up nurse infusion visits; these services are available 24/7 nationally. - Clinical Nurse Coordinators (CNC):
Nurses who initiate home-infusion start-of-care scheduling as well as troubleshoot nursing care needs on an ongoing basis. Each CNC is a certified Immune Globulin Certified Nurse (IgCN); these services are available 24/7 nationally. - Clinical Nurse Educators (CNE):
CNEs provide education for every nurse providing care to Nufactor patients. Individual and group educational opportunities are available in the form of Webinars and in-person programs. They also conduct patient education calls and therapy-specific Webinars. CNE services are available 24/7 nationally.
Diagnosis Specific Support:
- Chronic Demyelinating Polyneuropathy (CIDP); Guillain Barre Syndrome (GBS); Neuropathy
GBS-CIDP Foundation www.gbs-cidp.org
(866) 224-3301
Foundation for Peripheral Neuropathy www.foundationforpn.org
(877) 883-9942
National Institute of Neurological Disorders and Stroke www.ninds.nih.gov
(800) 352-9424
Neuropathy Action Foundation www.neuropathyaction.org
(877) 512-7262
American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) www.aanem.org
(507) 288-1225 - Chronic Lymphocytic Leukemia (CLL)
CLL Society www.cllsociety.org - Idiopathic Thrombocytopenia (ITP)
Platelet Disorder Support Association (PDSA) www.pdsa.org
(877) 528-3538 - Infectious Diseases
National Institute of Allergy and Infectious Diseases (NIAID) www.niaid.nih.gov
(866) 284-4107 - Multifocal Motor Neuropathy MMN
Foundation for Peripheral Neuropathy www.foundationforpn.org
(877) 883-9942
Neuropathy Action Foundation www.neuropathyaction.org
(877) 512-7262
American Association of Neuromuscular & Electrodiagnostic Medicine (AANEM) www.aanem.org
(507) 288-1225 - Multiple Myeloma
Multiple Myeloma Foundation www.myeloma.org
(818) 487-7455 - Multiple Sclerosis (MS)
National MS Society www.nationalmssociety.org
(800) 864-8337 - Myasthenia Gravis
Myasthenia Gravis Foundation of America (MGFA) www.myasthenia.org
(800) 541-5454
Conquer MG www.myastheniagravis.org
(800) 888-6208 - Myositis
The Myositis Foundation www.myositis.org
(800) 821-7356 - Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcus (PANDAS)
PANDAS. Network www.pandasnetwork.org - Pemphigus & Pemphigoid
International Pemphigus and Pemphigoid Foundation (ippf) www.pemphigus.org;
In the US [email protected]
(855) 473-6744 - Primary Immune Deficiency Disorders (PIDD)
Immune Deficiency Foundation (IDF) www.primaryimmune.org
(800) 296-4433
Jeffrey Modell Foundation (JMF) www.info4pi.org
(212) 819-0200
Severe Combined Immune Deficiency www.SCID.net
(800) 296-4433; www.scidstuff.wordpress.com
American Academy of Allergy Asthma & Immunology (AAAAI) www.aaaai.com
(414) 272-6071 - Stiff Person Syndrome (SPS)
International Parkinson and Movement Disorder Society www.movementdisorders.org
(414) 276-2145
IG Manufacturer Support:
Please ask a Nufactor pharmacist which IG product has been prescribed for you. Each manufacturer website has tools available for education as well as financial support specific to their individual product and diagnosis.
- Bioproducts Laboratory (BPL)
Gammaplex IVIG www.gammaplex.com
(877) 844-427-5872
(844-4BP-LUSA) - CSL Behring
Privigen IVIG www.privigen.com;
Hizentra SCIG www.hizentra.com
(877) 355-4447/IGIQ - Grifols
Gamunex-C IVIG/SCIG www.gamunex-c.com;
Flebogamma DIF IVIG www.grifols.com
(888) 474-3657 - Kedrion Biopharma Inc.
Gammaked IVIG/SCIG www.gammaked.com
(201) 242-8900 - Octapharma
Octagam IVIG www.octagamus.net;
Cutaquig SCIG www.cutaquigus.com
(866) 766-4860 - Pfizer
Panzyga IVIG www.pfizer.com
(800) 879-3477 - Takeda
Gammagard Liquid IVIG/SCIG www.gammagard.com;
Gammagard SD IVIG www.myigsource.com,
(617) 349-0200;
HyQvia Facilitated SCIG www.hyqvia.com;
Cuvitru SCIG www.cuvitru.com
Infusion Pump Support:
- Curlin Pump/Moog Corporation www.curlinpump.com
(800) 970-2337 - RMS Medical Freedom 60 www.rmsmedicalproducts.com,
Freedom Edge www.rmsmedicalproducts.com
(800) 624-9600
Financial Support:
- Healthwell Foundation www.healthwellfoundation.org
675-8416 - Manufacturer Copay Cards (see “IG Manufacturer Support” links above)
- Medmonk www.medmonk.com
(866) 234-3732 - National Council on Aging Center for Benefits www.benefitscheckup.org
- National Organization of Rare Diseases www.rarediseases.org
(203) 744-0100 - Needy Meds Good Days-Copay Assistance www.needymeds.org
(877) 968-7233 - Partnership for Prescription Assistance (PPA) www.medicineassistancetool.org
(877) 726-4727 - Patient Advocate Foundation www.patientadvocate.org
(800) 532-5274 - Patient Services Incorporated (PSI) www.patientservicesinc.org
(800) 366-7741 - RxAssist www.rxassistanceprograms.com
(866) 716-9716 - RxHope www.rxhope.com
- The Assistance Fund www.tafcares.org
(855) 845-3663
Research:
- Clinical Trials www.clinicaltrials.com
- Medline Plus www.medlineplus.gov
- National Institutes of Health (NIH) www.nih.gov
- National Organization of Rare Diseases www.rarediseases.org
(203) 744-0100 - Rare Diseases Clinical Research Network www.rarediseasesnetwork.org
(414) 476-3785 - SCID Hope Through Research www.scid.net
- U.S. National Library of Science Clinical Trials www.clinicaltrials.gov
Disability Support:
- Disability Benefits Help www.disability-benefits-help.org
- Disability Resource Network, Inc. www.disability-resource.org
(203) 732-0030 - US Department of Labor Americans with Disabilities Act www.dol.gov
- US Social Security Administration www.ssa.gov
(800) 772-1213
We welcome you to peruse our Nufactor website for Nursing Education and Nursing Support.
We encourage you to register for our Educational CE Webinars, Infusion Nursing Notes Blog (www.blog.nufactor.com) as well as subscribe to the IG Living Magazine (www.IGliving.com).
Thank you for caring for our patients, and for your contribution to Patient Advocacy.
Nufactor (800) 323-6832
