Advocacy
Disease Organizations
- CLL Foundation – www.cllfoundation.org
- Crohn’s and Colitis Foundation – www.crohnscolitisfoundation.org
- Dysautonomia International – www.dysautonomiainternational.org
- The Foundation for Peripheral Neuropathy – www.foundationforpn.org
- Guillain Barre/Chronic Inflammatory Demyelinating Neuropathy Foundation – www.gbs-cidp.org
- Hidradenitis Suppurativa Foundation – www.hs-foundation.org
- Huntington’s Disease Society of America – hdsa.org
- Immune Deficiency Foundation (IDF) – www.primaryimmune.org
- International Pemphigus & Pemphigoid Foundation – www.pemphigus.org
- Jeffrey Modell Foundation – www.info4pi.org
- Kawasaki Disease Foundation – kdfoundation.org
- Leukemia & Lymphoma Society – www.lls.org
- Lupus Foundation of America – www.lupus.org
- Myasthenia Gravis Foundation of America – myasthenia.org
- The Myositis Association – www.myositis.org
- National Bleeding Disorders Foundation (NBDF) – www.bleeding.org
- National Multiple Sclerosis Society – www.nationalmssociety.org
- National Organization for Rare Diseases (NORD) – rarediseases.org
- National Psoriasis Foundation – www.psoriasis.org
- Neuropathy Action Foundation – www.neuropathyaction.org
- PANDAS Network – pandasnetwork.org
- Plasminogen Deficiency Foundation – www.plasminogendeficiency.org
- Platelet Disorder Support Association – www.pdsa.org
- Rheumatoid Arthritis Foundation – www.helpfightra.org
- Spondylitis Association of America – spondylitis.org
- The Stiff Person Syndrome Research Foundation – stiffperson.org
- Von Willebrand Foundation – vwdconnect.org
- The Wiskott-Aldrich Foundation – www.wiskott.org
- World Federation of Hemophilia – wfh.org
